History of the Society
The National CML Society began as Carolyn's Hope, a work in memory of Carolyn M. Stephens, a vivacious person who valiantly faced her CML journey with courage and hope. During the journey, many of the services of this organization began to take shape.
Over the course of a few years, the realization came that there was no unified voice SOLELY for those on a CML journey in the United States. As others diagnosed with this disease have done, the family learned all they could about CML, sought out information from a variety of sources, attended support functions of larger organizations, yet still they were faced with more questions than answers for their journey. They also realized that assistance provided by other organizations, although greatly appreciated, was less for CML patients and families than that offered to patients with other cancers. Thankfully, for them, they had good insurance coverage; however the costs not covered were substantial.
After many discussions with CML families across the country, the consensus was that there needed to be an organization that dealt primarily with the ground-based issues facing all CML families. Although there are many great online support mechanisms, ground based support was lacking, as well as services to meet some of the unique needs of the CML community.
In December of 2009, Carolyn's Hope expanded to become The National CML Society, and officially launched as such in January 2010. Our goals are to provide expanded services for the CML Community. Those services include ground-based support networks, assistance with finding and securing financial aid, educational programs on proper disease monitoring, coping skills, day to day issues, as well as finding CML Specialists. Other services will be outlined throughout the society's website ongoing.
The National CML Society welcomes your input as we continue to develop services that meet even more of the needs facing this group of individuals. Have you discovered areas that need improvement while walking your unique journey? If so, let us know!